Privacy Policy

Who we are

Suggested text: Our website address is: https://www.puertajoven.org.

This policy may be periodically amended for your benefit as the General Data Protection Regulation is implemented. Our members, subscribers, and supporters will be emailed if there are material changes to how we manage their data.

Data is gathered by Puertajoven as part of routine business operations. The charity has always handled the data it collects in a secure manner. To ensure we stay secure and compliant, we have examined the processes, policies, and technologies involved in light of the current legislation, which has increased the standard for organisations throughout Europe.

We gather information to enhance the charity and the services we provide because we want to be completely honest in everything we do.

In order to notify you with campaigns and charitable news, we also collect information and permissions from you.

We never divulge your data to a third party. Ever.

We have posted the entire policy below, replete with a little legalese, in the spirit of complete transparency. In order to make it easier to navigate, we’ve created the links below. You can use the buttons below to move down the policy page and learn more if you are especially interested in learning more about a certain aspect of our privacy statement.

Overview

The Neurofibromatosis Association takes the security and privacy of the data we retain and handle for our donors, members, and beneficiaries very seriously. We detail how we maintain and follow the General Data Protection Regulation’s (GDPR), the Fundraising Regulator’s (FR), and the Information Commissioner’s Office guidelines in our privacy statement (ICO). The Neurofibromatosis Association is dedicated to keeping its users’ privacy well-protected. Our privacy statement (the “Privacy Statement”) was created to aid you in understanding how we gather, use, and protect the information you supply to us and to help you make knowledgeable decisions while using our services.

Position

Puertajoven takes all reasonable measures to protect the personal and non-personal data and information we record and does not support unethical fundraising (as defined by the Fundraising Regulator) or unsolicited communications. We also grant all of our supporters, members, and benefactors the right to erasure, commonly known as the right to be forgotten.

DATA THAT WE COLLECT

Both “Personal Information” and “Non-Personal Information” are collected by us. Non-Personal Information is information about you that cannot be used to identify you specifically, such as information about anonymous usage patterns, general demographic data we may gather, referring/exit pages and URLs, platform types, preferences you submit and preferences generated based on the data you submit and the number of clicks. When you fill out contact forms or registration forms on our website, you are providing us with personal information such as your email address, name, and contact information as well as the time of submission.

  1. Data obtained through social media services

The nonprofit organisation gathers non-personal information from social networking platforms including Facebook, Twitter, and Instagram as well as other analytic services. You may have left comments, messages, likes, clicks, and shares on our pages, which are included in this data. You cannot be identified from this data, which is used to develop marketing demographics.

  1. Data gathered from www.puertajoven.org.

The nonprofit organisation gathers non-personal information from Google Analytics and other analytic services linked to our website, https://www.puertajoven.org/. This information consists of the number of page visits, clicks, dwell periods, and other actions you might have taken on our pages. This information, which is anonymous to you, is used to assess the efficacy of our website.

Your personal information is gathered by the charity through contact forms that are either hosted on our website or by third parties. The aim of these forms and the parties with whom the data will be shared are always prominently displayed. The data will always be processed and accessible by charity workers, nevertheless. In each situation, the act of providing the charity with the user’s data is interpreted as giving consent for the charity and any applicable third parties to process the user’s data. This will be done to make it possible for people to register, take part in events, or provide other charitable services.

  1. Data you give us by making a purchase from our online shop

The nonprofit organisation gathers non-personal information from the services connected to our online store, including but not limited to Shopify and Google Analytics. This information consists of the number of page visits, clicks, dwell periods, and other actions you might have taken on our pages. This information, which is anonymous to you, is used to assess the efficacy of our website.

The charity gathers user-provided personal information through purchases made on the online store. This data is kept in third-party databases like Shopify and third-party plugins like Paywhirl, Streetshirts, and EasyReports, among others. These make the shop’s services possible. Additional third parties, such as site developers, who work for The Neurofibromatosis Association periodically access the data. Users consent to the storage and processing of data related to their purchases by completing the necessary purchase forms.

The aim of these forms and the parties with whom the data will be shared are always prominently displayed. However, charity employees or contractors will always process and access the data. In each situation, the act of providing the charity with the user’s data is interpreted as giving consent for the charity and any applicable third parties to process the user’s data. This will be done to make it possible for people to sign up, buy things, give money, participate in events, or receive other charitable services.

CONTACT US

If you have any questions regarding this Privacy Policy or the practices of this Site.